Introducing Down Syndrome Radio!
First, let me introduce myself. I am Jason, father of the cute little guy floating over Times Square in the logo above. Up until now this space was mostly filled with the wonderful musings of my...
View ArticleDSR Episode #1: Getting the News
Welcome to the inaugural episode of Down Syndrome Radio by the Down Right Awesome Dads, Mark and Jason. In this episode, we introduce ourselves and share our stories about receiving the diagnosis....
View ArticleDSR Episode #2: Telling Family and Friends / Common Medical Conditions
You may be thinking….two topics?!?! Why not? Yes, we attempt to tackle two topics in this episode. The second half of this episode picks up where we left off in Episode #1. After we received the...
View ArticleDSR Episode #3: Essential DS Resources
There are a ton of resources out there with varying degrees of useful information about Down syndrome. We break down what we think are the most informative, helpful and enjoyable websites, books,...
View ArticleDSR Episode #4: Special Needs Advocacy
IEP, IFSP, IDEA, NCLB….WTF?? Did you know that there are trained individuals who will help you decipher the acronyms and navigate the often confusing bureaucracy around special needs services? Well...
View ArticleDSR Episode #5: D.A.D.S.
A national organization comprised of dads dedicated to supporting the fathers and families of children with Down syndrome? Heck, it’s even named D.A.D.S! Sounds like a perfect match for our humble...
View ArticleDSR Episode #6: Down Syndrome Daily and NDSC Convention Prep
In the first few installments of this humble podcast, we found ourselves continuously visiting one site for ideas for our “great/amazing/inspirational story” segment. Down Syndrome Daily is an...
View ArticleDSR Episode #7: NDSC Convention Download
Running on fumes and adrenaline, we recap the highlights of the NDSC Convention from a very busy weekend in Washington, DC. From advocating on Capitol Hill to dancing the night away – with workshops,...
View ArticleDSR Episode #8: Special Olympics
In the short time that we have been recording this podcast, we have always stressed the importance of siblings in our kids’ lives. In 1962 one sibling raised the bar for brothers and sisters...
View ArticleDSR Episode #9: The Jérôme Lejeune Foundation
The mission of the Jérôme Lejeune Foundation is a simple and concise summary of the reasons why we started this podcast: Research, care, advocacy. Seems like a perfect match! Dr. Jérôme Lejeune was a...
View ArticleDSR Episode #10: Apptastic!
Rick from Down Syndrome Daily joins us again to talk apps. In typical dad fashion, we quickly take a turn for the worse and venture off topic. After trading bodily fluid stories, we get back on track...
View ArticleEpisode #11: Dana Halle and The Learning Program!
Dana Halle has made HUGE contributions to the Down Syndrome community over the years. She co-founded the Down Syndrome Foundation of Orange County many years back and more recently, she developed ‘The...
View ArticleEpisode #12: Chip Gerhardt and the Buddy Walk
October is National Down Syndrome Awareness month and we kick it off with a bang. We are very pleased to welcome Chip Gerhardt, Chairman of the Board of the National Down Syndrome Society (NDSS) to...
View ArticleEpisode #13: Everybody Plays with Kelle Hampton and Colette Cosky
There is something special going on here in San Diego this week. The seeds for true inclusion are being sown. These kids may think they are just playing with some cool toys in a really nice house,...
View ArticleDSR Episode #20: Current Challenges – Ages 2, 4 and 7
In this episode Jason, Mark and Rick each give an update on their child and the current challenges they are facing for their age category. Jason’s Dexter is two years old and is now walking. What a...
View ArticleDSR Episode #22: Signing Time with Rachel Coleman!
Rachel takes us back in time, telling us the story of her first child Leah and handling her deafness from diagnosis to the development of Signing Time. Like our children with Down Syndrome, Rachel...
View ArticleDSR Episode #23: Dr. Kishore Vellody!
Dr. Vellody is the Medical Director of the Down Syndrome Center at the Children’s Hospital of Pittsburgh. This guy REALLY understands the medical issues faced by our children! Because the center that...
View ArticleDSR Episode #24: DS Achieves with Lito Ramirez
We had the opportunity to speak with Lito Ramirez, founder of Down Syndrome Achieves. DSA’s mission includes Research and Funding, Political Advocacy and Education. They have a new initiative called...
View ArticleDSR Episode #25: DS Connect with Lisa Kaeser
The new DS Registry will provide huge opportunities to improve the lives of our children! We had the opportunity to speak with Lisa Kaeser about DS Connect which launched in September. Just listen to...
View ArticleDSR Episode #35: NDSC Convention Prep with Marilyn Tolbert
Dr. Tolbert, President of the NDSC Executive Council was kind enough to spend an hour with us discussing the upcoming convention in Orlando. It was enough to get us all really excited! First, some...
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